Healthwise

Our Health Library information does not replace the advice of a doctor. Please be advised that this information is made available to assist our patients to learn more about their health. Our providers may not see and/or treat all topics found herein.

Neurofibromatosis

Neurofibromatosis is a group of genetic conditions that cause tumors to grow on nerves and produces abnormalities in the bones and skin.

The most common form is neurofibromatosis Type 1 (NF1). It may cause dark spots to form on the skin that are similar to birthmarks (called café-au-lait spots). NF1 can cause tumors (neurofibromas) on or under the skin, in the eyes, or in the nervous system (brain and spinal cord). These tumors are often not cancer but, in some cases, can turn into cancer. NF1 also can cause developmental problems as a child grows that affect learning and memory.

There is no cure for neurofibromatosis, but treatment may relieve symptoms. Some people choose to have large or highly visible tumors removed by surgery. Surgery to remove tumors of the spinal cord, brain, or other nerves under the skin may be needed if the tumors are causing pain or disfigurement.

Due to the threat of the COVID-19 (Coronavirus), we are taking precautionary measures to protect our staff and patients. We are implementing a temporary NO VISITOR policy at this time. Only patients or patients and their guardians will be allowed into the office. Please note, this is not to inconvenience anyone! The virus is a very real threat and it is essential that we stay healthy in order to provide needed care for our patients. If you are sick, we ask that you CALL the office to speak with a nurse before you come in. The nurse will provide specific instructions for you. Please DO NOT enter the office if you are sick (upper respiratory symptoms, fever, cough, or flu like symptoms). We are closely monitoring the situation and will update you as circumstances change. Thank you for your understanding!!